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Social media enthusiast at the intersection of IT and Health care. Employee of The Drug Information Association: The Global Forum for Therapeutic Innovation & Regulatory Science - A Neutral, Nonprofit Association

Sunday, April 7, 2013

Rare/Orphan Diseases Track at DIA's 49th Annual Meeting

  • Is there a recipe for successful implementation of Registries for RareDiseases?
  • What is the emerging role of Crowdsourcing in Rare Disease research?

  • What incentives are available in US, EU and Japan to develop orphan medicines?
  • How can my organization engage with rare disease patient communities to develop treatment?
  • What are the challenges inherent in drug rescue and repurposing for rare disease and orphan products?

  • How do developers demonstrate the value of rare disease products to payer regulators?
  • What are the challenges facing development of new orphan drugs?
Posted by Unknown at 5:02 PM
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Labels: #DIA2013, #raredisease, crowdsourcing, DIA2013, Orphan Products

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