Showing posts with label patient. Show all posts
Showing posts with label patient. Show all posts

Tuesday, October 8, 2013

Move Toward Better Communication and Collaboration Among Patients, Payers, and Product Developers

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Move Toward Better Communication and Collaboration Among Patients, Payers, and Product Developers
 
DIA and the Brookings Institution are collaborating to strengthen communication between health care stakeholder communities. A Model of Patient, Payer, and Product Developer Collaboration to Support Innovating for Value will focus on highlighting the perspectives and outcomes most relevant to patient communities, reimbursement requirements and innovative payment models of most interest for payer groups, and how both can help inform product developers as they drive toward novel value-based innovation.
By exploring these issues and setting an actionable agenda for improving communication moving forward, this conference will be an important step toward ensuring that patients, payers, and product developers are each contributing to the creation of cost-effective, quality-producing therapies.
DIA Members Save $100. Register by October 9!
Session Topics:
     • Aligning Perspectives on Value and Outcomes
     • Identifying Stakeholder Needs and Challenges to Strategic Communication
     • Exploring Opportunities for Efficient Engagement Throughout Discovery,
       Clinical Development, Regulatory Review, and Product Use
     • Case Studies and Current Initiatives
     • Next Steps: Charting a Course Forward
     • And More
Keynote Speaker:
     • James Heywood, Co-Founder, Chairman, PatientsLikeMe
Confirmed Speakers:
     • Anne C. Beal, MD, MPH, Chief Operating Officer, Patient-Centered Outcomes Research Institute
     • Marc M. Boutin, JD, Executive Vice President and Chief Operating Officer, National Health Council
     • Shari M. Ling, MD, Deputy Chief Medical Officer, Centers for Medicare & Medicaid Services
       Center for Clinical Standards & Quality
     • Sean R. Tunis, MD, MSc, President and CEO, Center for Medical Technology Policy
     • Rhonda M. Medows, MD, FAAFP, Executive Vice President & Chief Medical Officer
       UnitedHealthcare
     • Tehseen Salimi, MD, Vice President of Global Evidence and Value Development, Sanofi Aventis
     • Frances M. Visco, President, National Breast Cancer Coalition
     • Reed V. Tuckson, MD, FACP, Managing Director, Tuckson Health Connections, LLC
Who Should Attend?
     • Patient groups interested in strengthening patient involvement in medical product development
     • Payer groups involved in reimbursement for innovative new products
     • Product developers considering the role of external stakeholders in the creation of cost-effective,
       quality producing medical products
     • Regulators, providers, and academic researchers pursuing cross-sector collaboration to
       improve health care stakeholder communication
Co-sponsored by:            




More Exciting Offerings:
US Conference on Rare Diseases & Orphan Products: The New Era in Health Care
October 7-9 | North Bethesda, MD
Co-sponsored with National Organization for Rare Disorders
The annual conference where all stakeholders in the rare disease/orphan product community convene to focus on rare diseases and orphan product research, development, and access. Search the Online Program.
Beginning with the End in Mind – Study Endpoints: Targeting Patient-Centered Outcomes
October 21-23 | North Bethesda, MD |
Register by September 30 and Save up to $200!
Gain insight into the tradeoffs and various stakeholder perspectives for developing a study endpoint measurement strategy, including detailed and practical tips for ensuring that measurement tools are adequate to support the targeted objectives with a focus on establishing instrument content validity for the specified clinical trial context of use.
Join FDA, EMA, Health Canada, and other regulatory agencies, patient, industry and academic representatives to discuss the progress and application of Benefit-risk assessment throughout the development and post-approval life cycle.
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Tuesday, September 17, 2013

DIA's 8th Annual Conference - The New Clinical Research Environment in India

8th Annual Conference | The New Clinical Research Environment in India: Implications and Opportunities | October 24-26 | Bangalore, India
Join academia, industry, regulators and researchers to discuss the new environment for health care product development at DIA India’s 8th Annual Conference.
The event, to be held in Bangalore from October 24 to 26, will provide a forum for professionals to hear how their peers are coping with the challenges of new regulations and how they are planning to realize the promise of emerging opportunities.
More than 90 renowned experts will speak on key issues, including keynote presenters Prof. Ranjit Roychaudhuory, Chairman of the Task Force for Research at Appollo Hospitals Group, and Mukhtar Ahmed, Oracle HSGBU’s Vice President of Product Strategy.
The conference will also feature 12 tracks with 48 sessions on the key themes of clinical research, IT, life sciences, medical writing, and biostatistics.
Program highlights include:
  • Direction, outlook and vision for health related research in India
  • Review of recent changes in regulations and their implications
  • Challenges to global development and commercialization ex-India
  • New opportunities for India-centric global delivery solutions
  • Global benchmarks in health care research regulations
  • Patient-centric endeavors for awareness and ethics of research
Exhibiting and Support Opportunities are available! Click here for more information.
upcoming events
US Conference on Rare Diseases & Orphan Products
THANK YOU
TO OUR MEDIA
PARTNERS
Keynote Speakers
Ranjit Roy Chaudhury Mukhtar Ahmed
Padmashree
Ranjit Roy Chaudhury

Apollo Hospitals Group
Mukhtar Ahmed
Oracle HSGBU
Featured Topics
  • Drug Discovery
  • Development
  • Manufacturing
  • Commercialization
  • Regulatory
  • Ethical, Social, Legal, Technology & Standards
  • Lean Strategy
  • Outsourcing Strategy
  • Pharmacovigilance
  • Therapeutics
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DIANews & PublicationsMeetings & TrainingsSpeaking & PublishingNetworking & CommunitiesExhibiting AdvertisingCareer Center

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Thursday, January 24, 2013

Special Opportunities for Patient Representatives - Deadline for application is Feb. 1

Special Opportunities for Patient Representatives
Dear Colleague,
Do you represent a 501(c)(3) organization in the United States or registered charities in Canada that serve constituents with major chronic diseases and/or rare/orphan diseases?
Then you can’t afford to miss your opportunity to apply for a scholarship to attend the DIA 2013 49th Annual Meeting as part of the Patient Advocate Fellowship Program.
Through the Patient Advocate Fellowship Program, DIA is working to ensure that the "voice of the patient" is heard globally in every facet of the life cycle management of pharmaceuticals, medical devices, and related health care products.
Twenty patient representatives, chosen through a competitive process, will have opportunities to develop, strengthen, and support collaborations with policymakers, industry, academia, and health professionals by taking part in all facets of DIA 2013 49th Annual Meeting in Boston.
Deadline for Applications: Friday, February 1

What is the Patient Advocate Fellowship Program?
The DIA Patient Advocate Fellowship Program is designed to:
• Develop, strengthen, and support patient collaborations with policy makers,
health professionals, industry representatives, and academia
• Increase the knowledge and understanding of patient groups about key issues
central to patient-centered health care, biomedical research, and drug development
• Develop the capacity of patient groups to advocate for change
• Improve alliances between patient groups and other health care stakeholders
• Stimulate cooperation, promote dialogue, and share best practices Hear more about DIA's Patient Advocate Fellowship Pogram:

DIA 2012 48th Annual Meeting Participating Organizations:
• ARPKD/CHF Alliance
• Averys Angels Gastroschisis Foundation
• Canadian Organization for Rare Disorders
• Cholangiocarcinoma Foundation
• HepTREC
• Huntington's Disease Society of America
• International Cancer Advocacy Network
• International WAGR Syndrome Association
• Lupus Foundation of America
• Mass General Cancer Center
• Mastocytosis Society
• MRSA Survivors Network
• National Alliance for Medication Assisted Recovery
• National Dysautonomia Research Foundation
• Nueva Vida (Latin Women with Cancer)
• Ovarian Cancer National Alliance
• Soft Bones
• Sturge-Weber Foundation
• United Nations Bone and Joint Decade
• Vestibular Disorders Association


What is the DIA 2013 49th Annual Meeting?
DIA 2013 49th Annual Meeting connects all partners involved in bringing new therapies to patients. Historically, this enterprise has focused on drug development, but today those partners include a very diverse range of stakeholders from biotechnology, diagnostics, and medical device companies, to regulatory agencies, scientific and academic communities, service payers and providers, and patient organizations. See for Yourself What Others Say about the DIA Annual Meeting...
Global Patient Initiatives
Patient organizations are key stakeholders in DIA’s mission to foster innovation to improve health and well-being worldwide. Find out how you can make an impact as a patient group representative.
Questions About the Application or Eligibility?
Contact Donna Mayer at Donna.Mayer@diahome.org.
Special Discount for Patient Organizations:
DIA offers another opportunity for patient organizations at the Annual Meeting by offering registration
for only $250, which includes a one-year complimentary e-membership. Proof of 501 (c)(3) status required. Download the registration form.
Keynote Speaker:
Daniel Kraft, MD
Executive Director, FutureMed

Hear from Dr. Kraft regarding the DIA 2013 49th Annual Meeting


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