The Patient-Centered Outcomes
Research Institute recently hosted its first patient engagement workshop, "Transforming Patient-Centered Research: Building
Partnerships and Promising Models."It was the first in a series of
workshops aimed at bringing PCORI's vision for patient and stakeholder
engagement to life.
Workshop participants
provided input to help PCORI establish procedures for identifying research
questions, reviewing research proposals for funding, and ensuring patient
participation throughout the research process. PCORI captured the
conversations at each session and will compile them in a detailed report that
will be released in about a month.
You can watch the archived
webcast of workshop plenary sessions here.
PCORI's Director of Patient
Engagement Sue Sheridan shared her experiences and reflections from the
workshop in a new blog post on the PCORI website.
In her post Sheridan
explains, "We heard a range of suggestions that we will explore further,
including how to best capture research ideas from patients and other
stakeholders, the concept of 'micro-grants' for building partnerships between
patients and researchers, enhanced patient participation in funded proposals,
tools for matching researchers with patient partners, and even the creation
of a PCORI Ambassador initiative. And we were repeatedly challenged to
'listen,' be fully transparent, responsive and inclusive."
Read the complete blog post
on the PCORI Blog.
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Social media enthusiast at the intersection of IT and Health care. Employee of The Drug Information Association: The Global Forum for Therapeutic Innovation & Regulatory Science - A Neutral, Nonprofit Association
Tuesday, November 6, 2012
PCORI Patient Engagement Workshop Blog Post and Archived Webcast
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