Tuesday, November 6, 2012

PCORI Patient Engagement Workshop Blog Post and Archived Webcast


The Patient-Centered Outcomes Research Institute recently hosted its first patient engagement workshop, "Transforming Patient-Centered Research: Building Partnerships and Promising Models."It was the first in a series of workshops aimed at bringing PCORI's vision for patient and stakeholder engagement to life.
 
Workshop participants provided input to help PCORI establish procedures for identifying research questions, reviewing research proposals for funding, and ensuring patient participation throughout the research process. PCORI captured the conversations at each session and will compile them in a detailed report that will be released in about a month.
 
You can watch the archived webcast of workshop plenary sessions here.
 
PCORI's Director of Patient Engagement Sue Sheridan shared her experiences and reflections from the workshop in a new blog post on the PCORI website.  
 
In her post Sheridan explains, "We heard a range of suggestions that we will explore further, including how to best capture research ideas from patients and other stakeholders, the concept of 'micro-grants' for building partnerships between patients and researchers, enhanced patient participation in funded proposals, tools for matching researchers with patient partners, and even the creation of a PCORI Ambassador initiative. And we were repeatedly challenged to 'listen,' be fully transparent, responsive and inclusive."
 
Read the complete blog post on the PCORI Blog.
 
 

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