The Patient-Centered
Outcomes Research Institute (PCORI) will host three workshops in
Washington, D.C., this fall as part of its effort to engage patients and
other health care stakeholders as meaningful and active partners in its
efforts to build a patient-centered research community and refine its
research agenda.
The workshops are designed to obtain
input from patients, caregivers and other stakeholders on PCORI's draft
process for generating and selecting specific research topics. Once
implemented, the process will lead to topic-specific funding
announcements that correspond to the five priority areas for research
outlined in PCORI's National Priorities for Research and Research
Agenda and complement the broad Funding Announcements that PCORI issued in
May.
Each workshop is designed to encourage
participation from a specific group within the health care community.
Attendance will be limited, but each workshop will be accompanied by a
public, interactive webcast. PCORI is prepared to support travel and
related expenses of invited attendees.
Workshops:
October 27-28
This workshop will focus on the
patient's role and perspective in PCORI's work, and provide an
opportunity for patients, caregivers, advocacy groups, researchers and
other stakeholders to start working together as a community to discuss
potential ideas for future research. It also will support PCORI's efforts
to raise the standards in the science of patient engagement by developing
promising policies for identifying research questions, reviewing funding
proposals and ensuring patient participation throughout the process.
Attendance is limited to 150 people; 75% of workshop invitations will be
reserved for patients, caregivers and organizations representing them.
December 4
This workshop will be an opportunity to
solicit recommendations for specific research topics and test PCORI's draft
process for determining which could be the basis of future funding
announcements. Attendance is limited to 100 individuals; 25% of
invitations will be reserved for patients, caregivers and the
organizations that represent them.
December 5
Research methodologists, patients and
stakeholders will further test the process for selecting research
questions and address a number of methodological issues that will help
PCORI refine the process to ensure that it addresses the needs of
patients and those who care for them. Attendance will be invitation only
and limited to 50 individuals due to the event's format.
More information about each workshop is
available on the PCORI website.
About PCORI
The Patient-Centered Outcomes Research
Institute (PCORI) is an independent, non-profit organization authorized
by Congress. Its mission is to fund research that will provide patients,
their caregivers and clinicians with the evidence-based information
needed to make better-informed health care decisions. PCORI is committed
to continuously seeking input from a broad range of stakeholders to guide
its work. More information is available at www.pcori.org.
Patient-Centered Outcomes Research Institute | 1828 L Street, NW, | Suite 900 | Washington | DC | 20036 |

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