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Gain a Common
Understanding of the Current and Emerging State of Rare Diseases and
Orphan Products.
Join patients, patient organizations, drug and device
companies, researchers, government professionals, and investors to
discuss ways to bringing rare disease and orphan product research,
development and access into the spotlight. Sessions will be organized
around three central themes: policy, research and regulation, and
special challenges. These sessions are intended to promote advancements
in science, patient care and other considerations that will address the
needs of the 30 million Americans suffering from a rare disease. Last
year’s event brought together more than 300 stakeholders, and this
year’s event promises even more.
FEATURED TOPICS:
- Policies
affecting rare diseases in this evolutionary time
- Legislation
that, by the time of the meeting, Congress is likely to have
enacted, including special provisions applicable to orphan
products
- How
to be a more effective advocate
- How
to work with federal agencies on grants and orphan designations
- Ways
to de-risk your investments in orphan products and better
understand
better the timelines for research and regulatory reviews
- How
the FDA and NIH work and interact with the drug and device
development processes
- How
to develop efficient clinical rare disease programs and avoid
common pitfalls
- How
the government and private sectors are addressing the special
challenges
faced by patients and companies in the new health care environment
- And
more...
Register
3 from your company and the 4th is FREE!
TABLETOP EXHIBIT OPPORTUNITIES:
Patient
organizations and patients are invited to attend the US Conference on
Rare Diseases and Orphan Products at a reduced registration fee of
$400. Contact Carrie.Dunn@diahome.org
for details.
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