The DIA Patient Advocate Fellowship Program - 2012 Participants

Patient Advocate Fellowship Program

The DIA Patient Advocate Fellowship Program is designed to:

• develop, strengthen, and support patient collaborations with policy makers, health professionals, industry representatives, and academia;
• increase the knowledge and understanding of patient groups about key issues central to patient-centered health care, biomedical research, and drug development;
• develop the capacity of patient groups to advocate for change;
• improve alliances between patient groups and other health care stakeholders; and
• stimulate cooperation, promote dialogue, and share best practices.

2012 PARTICIPANTS

ARPKD/CHF Alliance

Averys Angels Gastroschisis Foundation
Canadian Organization for Rare Disorders (CORD)
Cholangiocarcinoma Foundation
HepTREC

Huntington's Disease Society of America
International Cancer Advocacy Network
International WAGR Syndrome Association
Lupus Foundation of America

Mass General Cancer Center
Mastocytosis Society

MRSA Survivors Network
National Alliance for Medication Assisted Recovery
National Dysautonomia Research Foundation

Nueva Vida (Latin Women with Cancer)

Ovarian Cancer National Alliance

Program in Personalized Medicine & Targeted Therapeutics
Soft Bones
Sturge-Weber Foundation
United Nations Bone and Joint Decade
Vestibular Disorders Association

The application deadline for 2012 has passed. 

Please check back for information about DIA 2013 in Boston.

For more information about this program and other opportunities for patient organizations contact Donna.Mayer@diahome.org.