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Social media enthusiast at the intersection of IT and Health care. Employee of The Drug Information Association: The Global Forum for Therapeutic Innovation & Regulatory Science - A Neutral, Nonprofit Association
Showing posts with label Patient-focus. Show all posts
Showing posts with label Patient-focus. Show all posts
Wednesday, January 30, 2013
Session Highlights at EuroMeeting2013 - 4-6 March in Amsterdam
Labels:
Beat Widler,
Christa Wirthumer-Hoche,
EMA,
EU,
EuroMeeting2013,
exhibits,
Gabriele Schwarz,
GCP,
Guido Rasi,
Hans-Georg Eichler,
Patient-focus,
professional development,
public-private,
regulatory
Wednesday, October 3, 2012
Flexible Manufacturing Solutions To Adapt To The Evolving Industry Scenario - Hyderabad, India
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Monday, April 16, 2012
Can Patients Make Good Decisions? - from Forbes
Today is National Health Care Decisions
Day. This is a reminder to get your affairs in order while you still have
the brain to do so. But I wonder – do most people really have a clue how to
make their end of life decisions? Could this be why two thirds of our
population has not completed any advance directives? This needs to change.
Currently, much medicine is practiced paternalistically. Doctor tells you what to do, you go home and do it. Or not. Studies in the poorest of nations show that when the patient is empowered, outcomes and patient satisfaction with treatment are significantly better. In chronic illness, and especially end of life illness, patient empowerment is one of the last considerations when it should be the primary step in patient care. Focusing on patient goals first instead of the patient’s illness improves care and decreases cost of care.
more...
http://www.forbes.com/sites/carolynmcclanahan/2012/04/16/can-patients-make-good-decisions/
Currently, much medicine is practiced paternalistically. Doctor tells you what to do, you go home and do it. Or not. Studies in the poorest of nations show that when the patient is empowered, outcomes and patient satisfaction with treatment are significantly better. In chronic illness, and especially end of life illness, patient empowerment is one of the last considerations when it should be the primary step in patient care. Focusing on patient goals first instead of the patient’s illness improves care and decreases cost of care.
more...
http://www.forbes.com/sites/carolynmcclanahan/2012/04/16/can-patients-make-good-decisions/
Patients attempting diy clinical drugs to combat long wait for approved drugs
The Wall Street Journal (4/16, A2, Marcus,
Subscription Publication) reports that some patients with Lou Gehrig's disease
are attempting to create their own experimental clinical drugs at home and are
testing them on themselves. The Journal notes that these attempts at homemade
clinical drugs are driven by the frustration among Lou Gehrig's disease
patients over the slow pace of clinical drug trials or by the fact that they
are unable to qualify. The story notes that many of these patients believe that
experimenting with do-it-yourself drugs is worth the risk, because the average
life expectancy after being diagnosed with the disease is only about two to
five years.
Friday, April 6, 2012
American Diabetes Association to Collaborate with Quintiles’ Digital Patient Unit
RESEARCH TRIANGLE PARK, N.C. -- Quintiles and the American Diabetes Association (Association) today announced a strategic agreement in which Quintiles’ Digital Patient Unit will provide the Association’s millions of website users access to Quintiles’ medication monitoring service.
The Association’s constituents who opt in for the service will receive free safety checks of their medications to identify potential interactions and other risk factors, which are already provided to the 2.5 million registered users of Quintiles’ www.MediGuard.org. Registrants will also be eligible to participate in select direct-to-patient programs to benefit their medical conditions and advance global diabetes patient care.
“We are very pleased to offer this medication monitoring service to improve the lives of all people affected by diabetes,” said Vivian Fonseca, MD, President, Medicine & Science, American Diabetes Association. “This collaboration with Quintiles enables the Association to provide important safety information at no cost to our constituents.”
http://www.sunherald.com/2012/04/04/3862297/american-diabetes-association.html
Read more here: http://www.sunherald.com/2012/04/04/3862297/american-diabetes-association.html#storylink=cpy
The Association’s constituents who opt in for the service will receive free safety checks of their medications to identify potential interactions and other risk factors, which are already provided to the 2.5 million registered users of Quintiles’ www.MediGuard.org. Registrants will also be eligible to participate in select direct-to-patient programs to benefit their medical conditions and advance global diabetes patient care.
“We are very pleased to offer this medication monitoring service to improve the lives of all people affected by diabetes,” said Vivian Fonseca, MD, President, Medicine & Science, American Diabetes Association. “This collaboration with Quintiles enables the Association to provide important safety information at no cost to our constituents.”
http://www.sunherald.com/2012/04/04/3862297/american-diabetes-association.html
Read more here: http://www.sunherald.com/2012/04/04/3862297/american-diabetes-association.html#storylink=cpy
Tuesday, April 3, 2012
5 Buckets to Patient Engagement and the Role of HIT
What is patient engagement?
Patient engagement is a connection between patient, caregiver and health care provider. A trusted relationship forms and mutual respect is fostered. Patients and their families are empowered and they are active in health care decisions. However, patient engagement begins before the initial interaction with health care providers.
When patients and consumers recognize the need to be in charge of their health, patient engagement evolves. Patients and consumers have a choice to be an active participant in their health care. Those patients and consumers who choose to be actively involved and in charge of their health, work together with their health care providers to successfully reach their health goals and needs.
A recent study conducted (pdf link) by the National eHealth Collaborative “2012 NeHC Stakeholder Survey,” found that 64% of stakeholders’ survey described “patient engagement” as: “Patient uses educational material and online resources to learn about better health or their own health conditions.”
It’s interesting that most stakeholders surveyed felt that using educational materials and online resources best reflects the definition of patient engagement.
http://healthworkscollective.com/barbara-ficarra/30964/5-buckets-patient-engagement-and-role-hit?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+healthworkscollective_allposts+%28Healthworks+Collective%29&utm_content=Google+Reader
Patient engagement is a connection between patient, caregiver and health care provider. A trusted relationship forms and mutual respect is fostered. Patients and their families are empowered and they are active in health care decisions. However, patient engagement begins before the initial interaction with health care providers.
When patients and consumers recognize the need to be in charge of their health, patient engagement evolves. Patients and consumers have a choice to be an active participant in their health care. Those patients and consumers who choose to be actively involved and in charge of their health, work together with their health care providers to successfully reach their health goals and needs.
A recent study conducted (pdf link) by the National eHealth Collaborative “2012 NeHC Stakeholder Survey,” found that 64% of stakeholders’ survey described “patient engagement” as: “Patient uses educational material and online resources to learn about better health or their own health conditions.”
It’s interesting that most stakeholders surveyed felt that using educational materials and online resources best reflects the definition of patient engagement.
http://healthworkscollective.com/barbara-ficarra/30964/5-buckets-patient-engagement-and-role-hit?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+healthworkscollective_allposts+%28Healthworks+Collective%29&utm_content=Google+Reader
Monday, April 2, 2012
Why We Aren't Ready for Patient-Centered Care, from guest blogger at HealthWorks Collective
The follow is a guest post by Aanand D. Naik, MD @empoweringpts.
We hear lots of discussion nowadays about Patient-Centered Care. Most legislation for health care reform proposes innovative models of care such as Accountable Care Organizations and the Patient-Centered Medical Home (PCMH) with “Patient-Centered Care” at the core. Given all the attention: Who could possibly be against Patient-Centered Care?
In this wake, I forward the controversial contention that many patients, probably a majority of health care providers, and every major health plan and health insurer really doesn’t believe in Patient-Centered Care. Or at the very least, they aren’t ready to change the basic paradigms of health care to cultivate what Patient-Centered Care truly is and what its requires. Simply put, we aren’t ready for Patient-Centered Care.
To clarify my argument, a clear understanding of Patient-Centered Care is needed. The first consensus definition comes from the 2001 Institute of Medicine Report, Crossing the Quality Chasm. The IOM report defines Patient-Centeredness as, “providing care that is respectful of and responsive to individual patient preferences, needs, and values and ensuring that patient values guide all clinical decisions.” The report clarifies several principles of health system redesign that will better align health care along 6 quality dimensions. The principles most closely tied to the dimension of Patient-Centeredness include: a) customization of care based on patient needs and values; b) the patient as the source of control; c) shared knowledge and the free flow of information, and d) the need for transparency.
For more, click here.
We hear lots of discussion nowadays about Patient-Centered Care. Most legislation for health care reform proposes innovative models of care such as Accountable Care Organizations and the Patient-Centered Medical Home (PCMH) with “Patient-Centered Care” at the core. Given all the attention: Who could possibly be against Patient-Centered Care?
In this wake, I forward the controversial contention that many patients, probably a majority of health care providers, and every major health plan and health insurer really doesn’t believe in Patient-Centered Care. Or at the very least, they aren’t ready to change the basic paradigms of health care to cultivate what Patient-Centered Care truly is and what its requires. Simply put, we aren’t ready for Patient-Centered Care.
To clarify my argument, a clear understanding of Patient-Centered Care is needed. The first consensus definition comes from the 2001 Institute of Medicine Report, Crossing the Quality Chasm. The IOM report defines Patient-Centeredness as, “providing care that is respectful of and responsive to individual patient preferences, needs, and values and ensuring that patient values guide all clinical decisions.” The report clarifies several principles of health system redesign that will better align health care along 6 quality dimensions. The principles most closely tied to the dimension of Patient-Centeredness include: a) customization of care based on patient needs and values; b) the patient as the source of control; c) shared knowledge and the free flow of information, and d) the need for transparency.
For more, click here.
Better quality hurts patient experience
It may seem counterintuitive, but adopting mandated
quality measures could hurt patient experience--at least in the short-term,
according to a study scheduled for publication in Manufacturing &
Service Operations Management.
Calling it a "tradeoff," Ohio State University
research shows a negative link between clinical quality and a patient's hospital
experience after implementing quality strategies to meet state or federal
requirements.
Researchers surveyed directors of quality or chief
nursing officers at 284 hospitals in 44 states about their adherence to
guidelines from the Centers for Medicare & Medicaid Services, as well as
state patient safety guidelines, mandated in 2003. The researchers weren't
surprised to find that implementing techniques to reduce medical errors and
improve patient safety did, in fact, improve outcomes. However, they
unexpectedly found that "these improvements sometimes came at the expense of the
quality of the patient experience," according to a research announcement.
Read more: Better quality hurts patient experience - FierceHealthcare http://www.fiercehealthcare.com/story/quality-measures-can-worsen-patient-experience/2012-04-02?utm_medium=nl&utm_source=internal#ixzz1quh2p3r8
Subscribe: http://www.fiercehealthcare.com/signup?sourceform=Viral-Tynt-FierceHealthcare-FierceHealthcare
Thursday, March 29, 2012
Consumers Union’s Safe Patient Project to host Twitter chat on medical devices
***Entire article is posted below. Please visit the website for other worthwhile information.
Consumers Union’s Safe Patient Project to host Twitter chat on medical devices
Posted by Daniela Nuñez in Drugs & Medical Devices, Medical Device Safety
To help educate the public about medical device safety issues concerning Americans, Consumers Union’s Safe Patient Project will host a Twitter chat on medical devices on Friday, March 30 at 12pm CST using the hashtag #sppchat. The campaign invites any interested individuals to join the chat.
The medical device industry has been pushing Congress to scale back oversight, in order to promote innovation and make it easier to get new devices approved. According to a Consumer Reports poll, more than eight of 10 people said it was more important to prevent safety problems in the devices than it was to encourage innovation or avoid delays in getting them to market.
Recent problems with metal hip implants and surgical mesh have shown how our current system fails to ensure medical devices are safe and effective. The House and Senate draft bills to reauthorize the statute governing medical devices have been released. Recently, the FDA’s process for reviewing new implants has come under intense criticism. Join Consumers Union’s Twitter chat on Friday, March 30 for an informative discussion!
What: Twitter chat discussing medical device safety, Consumer Reports poll, Congressional legislation, and a forthcoming Consumer Reports article on medical devices.
Host: Consumers Union’s Safe Patient Project [@CUsafepatient]
When: Friday, March 30, 12-1pm CST / 1-2pm EST / 10am-12pm PST
Where: Twitter (hashtag #sppchat)
The medical device industry has been pushing Congress to scale back oversight, in order to promote innovation and make it easier to get new devices approved. According to a Consumer Reports poll, more than eight of 10 people said it was more important to prevent safety problems in the devices than it was to encourage innovation or avoid delays in getting them to market.
Recent problems with metal hip implants and surgical mesh have shown how our current system fails to ensure medical devices are safe and effective. The House and Senate draft bills to reauthorize the statute governing medical devices have been released. Recently, the FDA’s process for reviewing new implants has come under intense criticism. Join Consumers Union’s Twitter chat on Friday, March 30 for an informative discussion!
What: Twitter chat discussing medical device safety, Consumer Reports poll, Congressional legislation, and a forthcoming Consumer Reports article on medical devices.
Host: Consumers Union’s Safe Patient Project [@CUsafepatient]
When: Friday, March 30, 12-1pm CST / 1-2pm EST / 10am-12pm PST
Where: Twitter (hashtag #sppchat)
Wednesday, March 28, 2012
Americans Encouraged to Use American Diabetes Association Diabetes Risk Test, and Take Action for Their Health
press release
March 27, 2012, 10:06 a.m. EDT
Quest Diagnostics Supports 'Diabetes Alert Day'
Americans Encouraged to Use American Diabetes Association Diabetes Risk Test, and Take Action for Their Health
MADISON, N.J., March 27, 2012 /PRNewswire via COMTEX/ -- Quest Diagnostics /quotes/zigman/171542/quotes/nls/dgx DGX -0.66% , the world's leading provider of diagnostic testing, information and services, today joins the American Diabetes Association (ADA) in recognizing the 24th annual Diabetes Alert Day. This one-day "wake-up call" encourages the public to take the Diabetes Risk Test to learn if they are at risk for developing Type II diabetes, and join the ADA in the fight to Stop Diabetes®.
"We applaud and thank the American Diabetes Association for its leadership in encouraging people to know their risk for diabetes, and urge Americans to take a minute today to complete the Diabetes Risk Test," said Harvey W. Kaufman, M.D., Senior Corporate Medical Director, Quest Diagnostics, and co-author of a recent study published in the peer-reviewed online journal PLoS ONE, which found that twenty-eight percent of those found to be at high risk for diabetes through their employer's lab-based wellness program were unaware of the health concern. "Diabetes is a condition where knowledge is indeed power, where early detection can make a dramatic difference in patient empowerment and patient health."
For complete PR:
http://www.marketwatch.com/story/quest-diagnostics-supports-diabetes-alert-day-2012-03-27
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