Showing posts with label 501(c)3. Show all posts
Showing posts with label 501(c)3. Show all posts

Thursday, January 24, 2013

Special Opportunities for Patient Representatives - Deadline for application is Feb. 1

Special Opportunities for Patient Representatives
Dear Colleague,
Do you represent a 501(c)(3) organization in the United States or registered charities in Canada that serve constituents with major chronic diseases and/or rare/orphan diseases?
Then you can’t afford to miss your opportunity to apply for a scholarship to attend the DIA 2013 49th Annual Meeting as part of the Patient Advocate Fellowship Program.
Through the Patient Advocate Fellowship Program, DIA is working to ensure that the "voice of the patient" is heard globally in every facet of the life cycle management of pharmaceuticals, medical devices, and related health care products.
Twenty patient representatives, chosen through a competitive process, will have opportunities to develop, strengthen, and support collaborations with policymakers, industry, academia, and health professionals by taking part in all facets of DIA 2013 49th Annual Meeting in Boston.
Deadline for Applications: Friday, February 1

What is the Patient Advocate Fellowship Program?
The DIA Patient Advocate Fellowship Program is designed to:
• Develop, strengthen, and support patient collaborations with policy makers,
health professionals, industry representatives, and academia
• Increase the knowledge and understanding of patient groups about key issues
central to patient-centered health care, biomedical research, and drug development
• Develop the capacity of patient groups to advocate for change
• Improve alliances between patient groups and other health care stakeholders
• Stimulate cooperation, promote dialogue, and share best practices Hear more about DIA's Patient Advocate Fellowship Pogram:

DIA 2012 48th Annual Meeting Participating Organizations:
• ARPKD/CHF Alliance
• Averys Angels Gastroschisis Foundation
• Canadian Organization for Rare Disorders
• Cholangiocarcinoma Foundation
• HepTREC
• Huntington's Disease Society of America
• International Cancer Advocacy Network
• International WAGR Syndrome Association
• Lupus Foundation of America
• Mass General Cancer Center
• Mastocytosis Society
• MRSA Survivors Network
• National Alliance for Medication Assisted Recovery
• National Dysautonomia Research Foundation
• Nueva Vida (Latin Women with Cancer)
• Ovarian Cancer National Alliance
• Soft Bones
• Sturge-Weber Foundation
• United Nations Bone and Joint Decade
• Vestibular Disorders Association


What is the DIA 2013 49th Annual Meeting?
DIA 2013 49th Annual Meeting connects all partners involved in bringing new therapies to patients. Historically, this enterprise has focused on drug development, but today those partners include a very diverse range of stakeholders from biotechnology, diagnostics, and medical device companies, to regulatory agencies, scientific and academic communities, service payers and providers, and patient organizations. See for Yourself What Others Say about the DIA Annual Meeting...
Global Patient Initiatives
Patient organizations are key stakeholders in DIA’s mission to foster innovation to improve health and well-being worldwide. Find out how you can make an impact as a patient group representative.
Questions About the Application or Eligibility?
Contact Donna Mayer at Donna.Mayer@diahome.org.
Special Discount for Patient Organizations:
DIA offers another opportunity for patient organizations at the Annual Meeting by offering registration
for only $250, which includes a one-year complimentary e-membership. Proof of 501 (c)(3) status required. Download the registration form.
Keynote Speaker:
Daniel Kraft, MD
Executive Director, FutureMed

Hear from Dr. Kraft regarding the DIA 2013 49th Annual Meeting


Email Preferences | My DIA | Forward to a Friend | Facebook LinkedIn Twitter YouTube Flickr

Friday, December 28, 2012

Deadline for Application Feb 1 - Patient Advocate Fellowship Program

 

Special Opportunities for Patient Representatives
Patient Advocate Fellowship Program:
Do you represent a 501(c)(3) organization in the United States or registered charities in Canada that serve constituents with:
• Major chronic diseases; and/or
• Rare/ Orphan diseases?
Then you can’t afford to miss your opportunity to apply for a scholarship to attend the DIA 2013 49th Annual Meeting as part of the Patient Advocate Fellowship Program.
20 patient representatives, chosen through a competitive process, will have opportunities to develop, strengthen, and support collaborations with policymakers, industry, academia, and health professionals by taking part in all facets of DIA 2013 49th Annual Meeting.

Deadline for Applications: Friday, February 1, 2013
What is the Patient Advocate Fellowship Program?
 
The DIA Patient Advocate Fellowship Program is designed to:
• Develop, strengthen, and support patient collaborations with policy makers, health
professionals, industry representatives, and academia
• Increase the knowledge and understanding of patient groups about key issues
central to patient-centered health care, biomedical research, and drug development
• Develop the capacity of patient groups to advocate for change
• Improve alliances between patient groups and other health care stakeholders
• Stimulate cooperation, promote dialogue, and share best practices

DIA 2012 48th Annual Meeting Participating Organizations:
ARPKD/CHF Alliance,  Averys Angels Gastroschisis Foundation, Canadian Organization for Rare Disorders, Cholangiocarcinoma Foundation, HepTREC, Huntington's Disease Society of America, International Cancer Advocacy Network, International WAGR Syndrome Association, Lupus Foundation of America, Mass General Cancer Center, Mastocytosis Society, MRSA Survivors Network, National Alliance for Medication Assisted Recovery, National Dysautonomia Research Foundation, Nueva Vida (Latin Women with Cancer), Ovarian Cancer National Alliance, Soft Bones, Sturge-Weber Foundation, United Nations Bone and Joint Decade, Vestibular Disorders Association
 
What is the DIA 2013 49th Annual Meeting?
DIA 2013 49th Annual Meeting connects all partners involved in bringing new therapies to patients. Historically, this enterprise has focused on drug development, but today those partners include a very diverse range of stakeholders from biotechnology, diagnostics, and medical device companies, to regulatory agencies, scientific and academic communities, service payers and providers, and patient organizations. See for Yourself...

Global Patient Initiatives
Patient organizations are key players in DIA’s mission to foster innovation to improve health and well-being worldwide. Find out how you can make an impact as a patient group representative.
Questions About the Application or Eligibility?
Contact Donna Mayer at Donna.Mayer@diahome.org.
Special Discount for Patient Organizations:
DIA offers another opportunity for patient organizations at the Annual Meeting by offering registration
for only $250, which includes a one-year complimentary e-membership. Proof of 501 c3 status required. Download the registration form.
Just Released! Keynote Speaker:
Daniel Kraft, MD
Executive Director, FutureMed

Hear from Dr. Kraft regarding the DIA 2013 49th Annual Meeting


Email Preferences | My DIA | Forward to a Friend | Facebook LinkedIn Twitter YouTube Flickr

Tuesday, October 23, 2012

Pharma & Biotech Companies Donate Hundreds of Millions of Dollars to Copayment Foundations. Here’s Why.

from BIOtechNow


 
In addition to using their own Patient Assistance Programs, many pharma and biotech companies are supporting independent 501(c)3 non-profit copayment foundations to increase treatment compliance, access to care for insured Americans (including Medicare patients), and to promote proper disease management.
Mary SundeenMary P. Sundeen, President, HealthWell Foundation
Copayment foundations have helped hundreds of thousands of insured Americans afford their coverage and their treatments. The HealthWell Foundation, one of the nation’s largest non-profits, recently issued a white paper on copayment assistance as a primer for pharmaceutical and biotechnology personnel. Our goal is to assist with reducing a manufacturer’s exposure to legal pitfalls and to maximize their charitable donation.

for complete article:

Pharma & Biotech Companies Donate Hundreds of Millions of Dollars to Copayment Foundations. Here’s Why.